In this episode of Inclusion Europe Radio, Jeanne Nicklas-Faust, director of Lebenshilfe Germany and president of Inclusion Europe, speaks about raising her daughter Eva, who has a severe intellectual disability.
Jeanne talks about how Eva’s diagnosis changed her family’s life, why naming the disability matters, and how families can support siblings. She also shares how her volunteer work grew into a career in disability rights and leadership.
The conversation also explores progress in inclusive education and community living, as well as ongoing challenges such as institutionalisation, funding restrictions, and bureaucracy.
As president of Inclusion Europe, Jeanne shares her vision for stronger self-advocacy, greater family involvement, and continued action for deinstitutionalisation.
00:12 Meet Jeanne Nicklas-Faust
00:58 Eva's diagnosis
03:39 Reactions of family and friends
04:27 Sibling support
06:05 From volunteer to director at Lebenshilfe
08:24 Political setbacks for inclusion in Germany and Europe
15:12 Vision for Inclusion Europe
19:57 Joint action as a source of hope
21:14 How humor strengthens community